So after an ER visit due to another allergic reaction in November, I switched medications to a higher dose of a tricyclic we've already tried. I got into a neurologist in my hometown who told me that he could not give an official diagnosis of atypical trigeminal neuralgia since he had never seen a case only read about them in textbooks. Which made me feel like an extinct bird. And since he didn't think that atypical cases exist, I am again searching for a new neurologist as I know of many that do exist.
After which I saw a facial pain specialist who says that the trigeminal neuralgia is acting like atypical but he sees that diagnosis as a cop out to not finding the cause. He thinks it could also be cluster headaches as my migraine pain follows that pattern yet, the trigeminal pain is more likely a symptom of ms. So, my odds of whatever this is aint feeling great.
What really scares me is that I seem to be losing control of my hands, they keep dropping things that I'm holding, knocking over things that I meant to pick up, and I keep getting the pins and needles in my hands and feet. It's scary to feel like you hand is not getting the messages your brain is sending. But, looking forward to the EMG coming up in March and really praying something shows up.